Our relationship with the disorder Antiphospholipid Antibody Syndrome (APS) was on the rocks from the very beginning. Even the first clue that something was amiss would throw us into a whirlwind of doubt and mistrust, and begin our journey into the unknown.
Because recalling the events of this experience cannot be compressed into even a few paragraphs, each week I will feature Friday Flashback, which will give the details of the nuts and bolts of our journey. That will allow you to jump in and get caught up quickly.
It is my sincere hope that those who spend their days facing the fear and uncertainty of a rare illness might find support here, and maybe even a laugh or two. We caregivers are sometimes adrift in a sea of isolation as we continually give the very best of ourselves, whether we have the strength to do it or not.